A day to wear red

Posted 3/21/17

A day to wear red On Wednesday, March 1, Representative Chris Blazejewski introduced a resolution to officially declare for a first time March as Bleeding Awareness Disorders Month in Rhode Island. Meagan Murray, Warwick resident (third on left), and her

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A day to wear red

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On Wednesday, March 1, Representative Chris Blazejewski introduced a resolution to officially declare for a first time March as Bleeding Awareness Disorders Month in Rhode Island. Meagan Murray, Warwick resident (third on left), and her two children, TJ, who has von Willebrand Disease (in the front left), and Madeline. The Murray family advocated for passage of the resolution. Hemophilia and other inheritable bleeding disorders impact over 3 million Americans; an estimated 10,000 in Rhode Island. These diseases prevent the body's ability to form a proper blood clot when needed and can lead to extended bleeding and even death of not treated effectively.

Rich Pezzillo, Executive Director of the New England Hemophilia Association said, "We hope this renewed awareness will spur people outside of our communities to get engaged and help us further the discussion around the challenges patients face living with a rare chronic condition." There is no cure for hemophilia and treatment options are typically limited to a single intravenous medication that averages about $250,000 annually per patient. (Submitted photo)

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